Letter: State budget short of needs for the disabled

March 28, 2022

I write today on behalf of my 30-year-old nonverbal son Matthew who has lived for seven years in a home operated by UCP Seguin, a community agency that cares for people with disabilities. After a recent surgery, Matthew's doctor suggested that he rehabilitate in a nursing home. I called UCP Seguin for advice, because a nursing home does not have experience with the kind of care a developmentally disabled person needs.

These were the words that followed: "Matthew belongs in his home with the people who know him and love him." This meant the world to me, because I trust Matthew's caregivers. They are skilled at addressing his needs. They understand his silent communication and know how to respond. The caregivers at Matthew's home know exactly how to care for him. And to lose them? Unimaginable.

Unfortunately, this is the situation thousands of families in Illinois face. Significant underfunding from the state created a crisis in the community provider system, including an inability to recruit and retain qualified caregivers. Providers are forced to close homes, limit services and turn away families who are desperate for support.

Read the full letter to the editor via Daily Herald.