Over the last decade, people with intellectual and developmental disabilities have increasingly moved to community-based settings that provide daily life skills, support active engagement in the community, and foster an independent and safe environment.
Direct support professionals (DSPs) are the trained staff who provide that dedicated care and support. Unfortunately, DSPs earn woefully inadequate wages, which has caused a staffing crisis in Illinois as many of them leave for better paying jobs.
People with disabilities deserve the opportunity to lead a full, meaningful life. But they must have support for everything from eating, bathing and administering medication to job and life-skills training. That support comes from DSPs whose starting wages, on average, are reimbursed by the state at just $13 an hour. This acute staffing crisis has been compounded by the state’s overall failure to adequately fund nonprofit provider agencies that serve people with disabilities.
As a result, people with disabilities and their families face constant change and uncertainty. And worse – it can be dangerous, even life-threatening, when there isn’t enough staff. More and more providers are forced to shut down programs and turn people away who need and deserve support. The wait list for services is nearly 20,000 in Illinois. The state meets other obligations – funding jails, skilled nurses and schools. Illinois needs to make people with disabilities a priority.
Amidst the COVID-19 pandemic, DSPs are among our frontline heroes, going to work every day to keep people with disabilities safe and healthy, and to provide care and a sense of normalcy. But, ironically and unfairly, DSPs are also among the low-income workers who will be hit hardest by the pandemic’s economic and societal fallout.
They Deserve More, a coalition of nearly 90 agencies and organizations, was founded in 2017 to ensure that people with intellectual and developmental disabilities in Illinois get the services they deserve. After nine years without a DSP wage increase, a few small raises were secured, resulting in the current $13 an hour reimbursement. Additionally, the 2019 state budget provided the first slight cost-of-doing-business increase in 11 years for programs for people with disabilities.
Upcoming minimum wage increases are great for Illinois workers, but they threaten to undo the progress we’ve made. When you can make $15 an hour at Amazon or $26.50 as a census worker, it’s sadly an easy choice to leave. This problem is even more dire in Chicago, where the minimum wage will rise to $14/hour in July. At the same time, the state hasn’t fully taken into consideration the rise of inflation and cost of doing business.
In May 2020, state legislators only met for a handful of days, and they ultimately passed a “flat” budget with little room for additional spending. Even so, the state budget included a $1.00 per hour increase in state reimbursements for wages starting July 1, 2020 and another $0.50 increase starting January 1, 2021.
Stay tuned for updates this fall when the General Assembly will reconvene during the veto session.